News from the Sitting Position

Thursday, August 16, 2007

CCA Purposal!

Author's Note: This is the floor proposal, which means presented from the Convention floor, I'm going to present in support of the Community Choice Act (CCA) at the Green-Rainbow Party Convention on August 25th. As many of you know, I have been working to pass a National homecare legislation formerly called MICASSA the Medicaid Community Attendant Services and Supports Act, along with many of my colleagues both disabled and not disabled in the disability rights movement around the country. This... Sign in to see full entry.

Thursday, February 8, 2007

My Sex Ed Speech for Making Healthy Connections

Author's Note: This is my speech to Making Healthy Connections, a disabled teen and young adult group that I'll meet with on Saturday. I'm teaching them a dance class, as well. I'm excited! First off, let me say that every human being on the planet has right to express their sexuality and affection to any other human being as long these feelings are not based in harassment or unwelcome, whether or not either person has a disability of any kind. Yet, throughout the past decades and centuries,... Sign in to see full entry.

Friday, December 15, 2006

Don't Murder Your Kid!

You can't kill your kid just because they're disabled... But some parents are doing just that... On November 22 nd, just a little over three weeks ago 12-year-old Ulysses Stable was murdered by his father because he was autistic. Also killed this year were adorable, three-year-old Katie McCarron (the only child I could find I picture of), William Lash, Ryan Davies, and Christopher Degroot. All of these children had autism. Maybe their parents lacked support services; I know mine did. They had no... Sign in to see full entry.

Saturday, September 16, 2006

End of The Action...

On Thursday, we went to HUD and got a meeting with Secretary Jackson (which is a miracle) and then we invaded the Republican Headquarters. I ran into friends from New Jersey who knew Colleen, my friend who died on Flight 93. We covered up Bush II's picture with a "No More Excuses" sign, but the Repubs agreed to meet with us. On Friday, we lobbied our Congress people. Olver's got a new assistant and I'll call her everyday I'll Olver signs on to MiCASSA. Then we danced and had cake. I went to bed... Sign in to see full entry.

Wednesday, September 13, 2006

Action- Day 2

Yet another easy day here in DC, we meant with Caroline Ignomily (Sp?) the director of the Managed Care Association of America who was meeting at the Hilton. And than about 50 of us went to the Rayburn Building for an ADA hearing which was really boring. I feel asleep for a little bit of it, but than my cell phone rang. But I guess we had a good effect because Senator Harkin's staff called and praised us. Now, I'm working on the Green speech. And thinking about the book. Nothing much else to... Sign in to see full entry.

Tuesday, September 12, 2006

Action Report Day 1- Kaiser's Office

We went to see Secretary Kaiser. Head of PHADA (the Public Housing Authority Directors Association) who was having a special meeting in the Hyatt DC with all the other housing authority directors. He wasn't happy to see us, as you can imagine. The Hyatt people were so confused. At first they tired to help us, but then they got mad when they figured out that we were there to protest. But we got what we wanted and thery're going to meet with us in late September; I think the police basically made... Sign in to see full entry.

Thursday, July 20, 2006

Horrible Act of Discrimination

I was horribly discriminated against by Bob's Discount Furniture today This was very disappointing to me as I perfer to shop locally rather than at a big, huge corporate chain and Bob's is always doing good community-based things. They promised me that they would take away my broken Craftmatic bed and soiled mattress (they knew both that the mattress was soiled and that the bedframe was a Craftmatic. The salesman, Alan, was very reassuring and told my PCA Angie who was with me the whole time, my... Sign in to see full entry.

Thursday, April 13, 2006

MiCASSA Update!

The following is a list of the Medicaid Community Attendant Services and Supports Act (MiCASSA) cosponsors. This is a bill which would allow any disabled person in need of personal care assistance to receive their services anywhere in the country, instead of moving from place to receive their needed services. My own House member is not represented, John Olver, but I'm going to visit him with a group of friend and fellow activists on Thursday and try to change his mind. Both of my senators,... Sign in to see full entry.

Sunday, April 2, 2006

On the Chicopee Jail and Disability Rights

According to reporter Pamela H. Metaxas’s Springfield Republican article of September 20, 2005, the Chicopee women’s jail will cost $27 million to construct. Despite the myriad of problems associated with spending so much money on a facility designed to incarcerate women who are mostly convicted of non-violent, drug-related offenses including the fact that as our other speakers have mentioned these funds could be better spent on childcare, job training, post secondary education, housing, social... Sign in to see full entry.

In Memoriam: Bob Blue

Bob Blue (7/31/48- 3/17/06) was a musician, an educator, a father, my friend, my good Scrabble buddy, and basically a rock in my life. I saw him nearly every week for the past year. He was first a friend and employer of my friend Laura Anderson, who become his last live-in personal care assistant, but we became friends separately from the fact that we both knew and loved Laura. At first, we just played Scrabble every Friday and talked not much, but gradually we begin to have good conversations... Sign in to see full entry.

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