Saturday, December 16, 2006
Juggling Meds with Eating
Saturday mornings are so boring for me. It's "bone pill day." Once a week, I take a medication that is supposed to stop my bones from thinning. I have osteopenia, pre-osteoporosis. I have 4 strikes against me. 1) It's very common in post-menopausal women. 2) I am taking medication to keep my cancer from coming back and the absence of hormones, especially Estrogen, which fuels my cancer, gets revenge for killing it off by attacking my bones. 3) Parkinson's patients, especially post-menopausal,...
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Sunday, December 10, 2006
"No Doctor Here By That Name"
We went to Disneyland Easter weekend and went to the head of each ride because of our mother being in a wheelchair (never diss a Handicap placcard!) Have you ever felt that you were in some true-to-life Twilight Zone episode? I had just had a fast Parkinson's progression in one week. My big toe had started to pulse on a Friday morning. By that night, the whole toe was moving. By the middle of the week, all the toes had a tremor. By the next weekend, I was lying out on my sister's deck in...
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Friday, December 8, 2006
Dr. Who?
Can you guess which one I am in 1987? I am second from the right in the blue dress. It is an event I will have seared in my brain forever! I called to make an appointment with my neurologist, Dr. Moroney, and the person answering the phone said, "Dr. WHO?" I had just returned from a great week spent at my sister's house in California. What started out as a "let's get together during spring break" type of comment, ended up with seven females of legal age in our family converging upon my sister's...
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Thursday, December 7, 2006
Parky Holding Hands with BC !
Since my walk with Parkinson's has included holding hands with breast cancer, I thought I would share some GOOD news I just read about for where I live. For so many years, I have been asked the funniest questions about Kansas. One professorial friend who was a guest at a dinner party at my sister's house in Boston asked, " So, what do people DO in Kansas?" My answer was, "The same as what people do here in Boston, I imagine." He laughed and said that had been a dumb question. I assured him he...
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Monday, November 20, 2006
I'm Still Sorta Standing
My husband's Aunt Mary is 82 and she has Parkinson's disease. She has only had her diagnosis for 3 years. I am 53 years old and have had it for 23 years. I am an early onset patient which means Parkinson's progresses slowly as it has in my case. When you are older and are first diagnosed, it can and does move at a faster and equally debilitating rate. Medication have a different effect on an 82 year old compared to a 53 year old. I can always offer support so I wrote Aunt Mary a poem. It did the...
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Saturday, November 4, 2006
The Most Generous GIft
The Most Generous Gift I duplicated the blogs I have lately written regarding Parkinson's and copied them to this site in one fell swoop. I am not here for the clicks. If you are searching for information, I have shared some of my experiences of a person with Parkinson's who remains insulted by Rush Limbaugh's antics, mimicking this horrible, life-altering, debilitating disease that HAS NO CURE. The only future retirement we have to look forward to is immobility, falls, bruises, broken bones,...
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Home My Favorites My Account Sign Out Browse Search Write Help Community Life As I Cee It By ceemarie53 - About Me - E-mail this page - Add to My Favorites - Add to Blog List - See other blogs in Journal Friday, November 3, 2006 117 Items of Compulsion What strikes me about this receipt, is that it shows I bought 117 items on my day of compulsivity. My friends wrote back and told me, "Thanks for the laugh on you!" My sister in Boston thought she knew which one of my meds caused this “compulsive”...
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Saturday, October 14, 2006
Dear LadyCee:?
Dear Lady Cee?-- What do you think could be done to improve our health care system ANSWER: We had over $23,000+ in out of pocket health care costs in 2005. It took our income into the poverty level. We are self-employed. I am on Medicare part D, but had to pay $3600 this year in the middle of the plan to get out of the donut hole, and have to pay Medicare $35 a month for that, BCBS $100 a month for supplemental policy, and get a separate dental rider for $35 a month. Those politicians screwed us...
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Monday, October 9, 2006
It Pays to Ask
It pays to ask. I picked up my antibiotics to treat the UTI that popped up over the weekend, and my husband thought the bill was cheap. I asked the girl waiting on us why that drug, being a generic, was being charged to me at full price. I said, "I am OUT of the donut hole! Generics cost me next to nothing (at least until New Year's.) Wouldn't this be on the approved list?" She looked it up, and sure enough, someone had not done their job. Now I can be on the mend again, AND for next to nothing....
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Friday, October 6, 2006
Sharing Symptoms
We had a family reunion last weekend and one of the aunties, Mary, has Parkinson's. I asked her how she was doing. We each commented on how well we noticed the other did certain things, like stand up! That is one of the things you're evaluated on; cross your arms across your chest and stand up. My anti-cancer drug is making my knees achy and they creak, but I can still stand up. She named a few other things she was having problems with and they were very much like what I go through. We talked...
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