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Bhaskar-
You left an earlier comment I missed until today! I would say the persistant feeling is correct; your finger is on the pulse. Not one to be caught in that trap, not yet, I will fly free with the other butterflies to enjoy the warm days ahead. Time enough to be cacooned. I Thank you.
Lady Cee
posted by
LadyCeeMarie
on December 14, 2006 at 4:51 AM
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YP-
Such powerful words, these, describing an indominable spirit, a woman wise and vulnerable, but ever so human. Thank you!
Lady Cee
posted by
LadyCeeMarie
on December 14, 2006 at 4:47 AM
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HI LADY CEE. SO GREAT YOUR WRITING IS UPLIFTING TO ALL. i bring poetry
of anguish too.
Something in childhood kept anguish at bay
"We aren't wealthy, but I'm happy," she'd say
Dad's alcoholism closed open doors
In our land, then, it was the least of flaws
A girl's wonder, marvelous mind and heart
Soaked up God, goodness, philosophy, art
How could evil win when her soul was right?
She came here on a scholarship, Fulbright
As with milk spilled over tongues, spread - whited--
Each bud, like a country fed, united --
Ingesting food for body, mind and all
Anguish sneaked in through a crack in the wall
Called education of contradictions
Dreams bled black and red in paroxysms
(c)Deo, 12.13.2006
posted by
ILLUMINATI8
on December 13, 2006 at 3:13 PM
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Cee
You share so openly the trials and tribulations of PD or at least how it's effecting you. I admire your courage and spirit. Cee - Teacher, wife, survivor, and gentle soul.
posted by
Troosha
on December 13, 2006 at 2:32 PM
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Taps-
You are always so nice to me! Thank you so much! I think I have PD on both sides of the family on top of it. I remember thinking of my uncle, age 85, who passed away the end of August. One of the nursing homes had been giving him leva dopa because he did have a tremor. last time I visited him, he was so stiff while they tried to bathe him (he was in the hospice program at home by then) and other signs of PD were evident. I talked to my cousins one on one about my suspicions. The only problem with hospice care is that they can treat for ONE ailment (since their purpose is not to maintain, but to help one die). I just wanted the family not to bully him, or tell him to breathe deeply so he wasn't so rigid. His own family went back and forth as far as feeding him vs. his feeding himself, or his being hungry or not hungry, or sitting on the commode vs. the bedpan. He passed quietly in the night but not without suffering. The hospice nurse said he probably DID have PD; my point was that they should not expect him to do things that were impossible for him to do. Be kind, encouraging and understanding. He had definite symptoms. His grandma, my GGma, had a tremor in her head. I felt my oldest sister's hand have a definite tremor back in '02 and her husband asked if I'd noticed. We were holding hands during my Dad's funeral. She is keeping very quiet about it. She's 68 and quite active as I used to be. The longer she goes without medications, it will be better in the long run. I went 6 years, luckily. You build up immunity or a tolerance for synthetic substitute leva dopa and then you look like MJFox.
Cee
posted by
LadyCeeMarie
on December 12, 2006 at 2:56 PM
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CeeMarie, What a wonderful post. As far as I know, there are no PD patients in my family at all (we have other "defects" such as diabetes) but I am so thankful for you and the way that you educate people who don't know about PD and the way that you support those who do suffer from it. You are a very special person.
posted by
TAPS.
on December 12, 2006 at 1:37 PM
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Muser-
As in YP's post, you know I will keep you near my thoughts and nearer still to my heart as a sister in this disease! You know, I've had doctors outside of neurology who used to laugh when they heard me say I had PD. Always, I was too young. Oh to have that reason again. Anyway, I know better than that! I had one who was testing me for carpal tunnel and in those days, you had to lie on a table while they stuck needles in you nerves. He was one of those laughers until I started shaking so badly on the table, I almost fell off! His smile went away just like that (snapping fingers.) He got his readings and I had wonderful CP surgery (different from most) and again, it was by a KUMed dr., a world renowned authority in hand surgery, who ordered OT, 11 visits, and I recovered all use of that hand. I need to have him do the other one someday. My HGH (human growth hormone) injections for two years took it away but with the cancer treatment (NO hormones for me!) and change in drug regime, it's baaaack and holds up my typing with the left hand for too long at a time. I know he wonders where I've been! One usually has this taken care of soon after DX and I've waited at least 5 years!! Just one more thing... my PD nurse gave me a recommendation of a great plastic surgeon who will take care of my droopy eyelids (I hadn't realized their consequential deterioration was so noticeable; my daughter assures me they are!) It IS covered by Medicare for PD patients, the nurse assured me. (there is a name for it, too!) I'm tired of being cut on!! OK - no more complaints!! It could be a LOT worse!
Cee
posted by
LadyCeeMarie
on December 12, 2006 at 8:54 AM
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YP-
Again, I thank you for your presence to my blogs and leaving a mind/thought provoking image. We'll both be praying for Muser on Wed. that the doctor is able to bring her relief thru medical science and Jesus bring her comfort through His almighty Love for her!
LadyCee
posted by
LadyCeeMarie
on December 12, 2006 at 8:38 AM
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star-
Thank you for the read and comment! And you are welcome- wish I could store more than a hundred of them!
Cee
posted by
LadyCeeMarie
on December 12, 2006 at 8:35 AM
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wow, thanks for sharing a loving picture
posted by
star4sky5
on December 12, 2006 at 7:54 AM
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Dea Whacky-
And it really happened. Sometimes life can be crazier than fiction. Thanks for reading!
Cee
posted by
LadyCeeMarie
on December 12, 2006 at 5:12 AM
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Lady Cee,
I deeply feel ' and this is a persistent feeling, in me for one who is in pain. But it just doesn't end there. I admire you because of your fighting spirit, and the fact that you do not complain and still find happiness and distribute Blessings generously. Write well of course, is another. Thank you, Ma'am.
posted by
Bhaskar.ing
on December 12, 2006 at 5:10 AM
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bandanafish
Thank for noticing that. I could have added that it changed my whole life; the path I was on made a 90 and I've not looked back. (except to be thankful!)
Cee
posted by
LadyCeeMarie
on December 12, 2006 at 5:06 AM
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Bhashkar-
Thank you again for your always kind comment. I am proud to know that you hold me so highly in your estimation. Your are a kind and a generous sir.
Lady Cee
posted by
LadyCeeMarie
on December 12, 2006 at 5:03 AM
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I'm glad that dreadful day ended nicely.
posted by
bandanafish
on December 11, 2006 at 6:48 AM
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Hi Cee, you gave me that caress of Grace in your comment in my blog.
You are such a kindly lady whom I deeply admire. Thank you so much,ma'am.
posted by
Bhaskar.ing
on December 11, 2006 at 4:12 AM
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That was such a awesome post. Very moving!
posted by
Whacky
on December 10, 2006 at 7:49 PM
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Lady Cee
"
and gave her that caress; that release of a burden no longer hers to bear". This is simply God's Grace. Very movingly beautiful.
posted by
Bhaskar.ing
on December 10, 2006 at 4:12 AM
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Such a blessing that Ceemarie and MUSER can share on this important topic
Thanks and Blessings to you this Christmas and laways Carole and Muser.
http://upload.wikimedia.org/wikipedia/en/b/bc/Shield-Trinity-Scutum-Fidei-English.png
posted by
ILLUMINATI8
on December 10, 2006 at 3:47 AM
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Our doctors are so important to us, Cee! I can't believe your Dr. just up
and retired without telling you! My first doc was a nice person, very bright too - am m.d., p.h.d. he basically told me to take my meds and see him again in a year. that made me feel like a victim, so i called shands hospital associated with the university of florida, and was assigned to dr. melvin greer, head of neurology there.boy, did i get lucky! he is a great doctor, and a fine man with a fabulous sense of humor. i was soon a part of several research studies.when we returned to nc, i called duke university to inquire about their dept. of neurology, and by luck i was assigned to dr. burton scott, again i got the luck of the draw! this fast onset sure describeswhat is starting to happen, but instead of tremors, i feel like i am paralyzed. i am looking forwad to feeling like a "renewed" person on wednesday! your writing gives me courage and strngth...thank you so much for being here.
posted by
muser
on December 10, 2006 at 3:02 AM
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