Comments on Two Days Out By Myself

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I am glad you got out! I love the idea of putting your poetry on cards! Have fun! I am not tech savvy and cannot assist! sam

posted by sam444 on November 13, 2008 at 5:32 PM | link to this | reply

Re Richard
 I was doing well with a caregiver assistant 20 hours a week. Not well but I could get rest in the afternoons.  Teena is coming over everyday to help me even though she has been cut back to 6 hours a week. My other option is a nursing home and I can't do that to him at this point while he is not totally confused.  If I get too tired, I will shut down for a day or two.  At this point if Richard can't wake me, his brain rewires and he can do more for himself.  And this is nothing he can control.  When he freezes up and goes into a body/brain disconnect,  no matter how much he may try he cannot move unless I am not available for a while.  I have woke up and found him standing by the bed and cannot get in or sit down.  He will have been standing for an hour or more.  My body might get tired but my spirit knows without a doubt I am doing what I am supposed to be at this point in time    Love and Light sharon

posted by skye08 on November 13, 2008 at 4:11 PM | link to this | reply

How long can you go on surviving with Richard at home? Are there any other options in USA? You must live in exhaustion mode permanently. Keep well!

posted by Rockingrector_retd on November 13, 2008 at 11:52 AM | link to this | reply