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Re: Samantha
I hope they will find some workable medication. Actually I hope they will find a cure.
posted by
Justi
on March 31, 2008 at 11:21 AM
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Re: Oh Justi, I'm so sorry to hear you're not feeling well!
Sira890 I do appreciate your words of consolation. I wish they would do some studies for those women to follow. I know now this is what my mother had that they never found a diagnosis for. Thank you, you are so kind.
posted by
Justi
on March 31, 2008 at 11:20 AM
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Re: pelagus
Thank you kindly for your kindness.
posted by
Justi
on March 31, 2008 at 11:18 AM
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Re: I sure hope you're feeling better, Justi.
Nautikos I have been blessed with three great days. Thanks for your kind words.
posted by
Justi
on March 31, 2008 at 11:17 AM
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my mom has this and I can see the pain she is in sometimes...
good luck to you and god bless
posted by
Samantha39
on March 30, 2008 at 8:38 PM
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Oh Justi, I'm so sorry to hear you're not feeling well!
I know a woman who suffers from fibromyalgia, and I've seen the pain that it causes.
Take care, and don't pay any attention to the people who say "it's all in your head". They're not in your head, and have no idea what you're going through.
posted by
Sira890
on March 30, 2008 at 10:06 AM
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thank you for sharing this story. i'm sorry you have to go through such troubles 
posted by
pelagus
on March 28, 2008 at 1:05 PM
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Re: Justi......................
If I may add, Justi. I suffered with severe Polyneuropathy for months before I found a doctor who knew by the symptoms what it was. I was at my wits end with pain. My ignorant doctor treated me for Depression, of which I knew was wrong and refused to take the anti-depressants. My husband fired her and the next Intern I saw referred me to a neurologist who started treating the problem. He has not been able to completely take away my pain, I have it all the time, but he saved my sanity and made life bearable. My heart goes out to you, dear lady, and don't we wonder, "why us?" I know pain and you have my prayers.
posted by
MaggieMae
on March 28, 2008 at 6:09 AM
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I sure hope you're feeling better, Justi.
This sounds really quite bad! There's so much that medicine does not have a handle on yet...
posted by
Nautikos
on March 27, 2008 at 7:08 PM
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i am so sorry to hear that dear justi...my health condition is not that easy either...please be well...
posted by
__Purple_Mermaid11__
on March 27, 2008 at 3:43 PM
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Justi, a month or so ago I wrote a blog post about my niece who suddenly collapsed and died. She was barely 50 but she had been suffering from Fibromyalgia for years after even more years of doctors trying to find out what was wrong with her and
if there was something wrong with her. Some doctors thought it was in her mind. It was not the fibromyalgia which killed her. The autopsy that authorities insisted on to rule out foul play showed that it was a combination of drugs that caused her to stop breathing. She was on a morphine derivative for the terrible pain, other prescription medications for high blood pressure, and then she came down with a really bad cold for which she began taking OTC pseudoephedrine without first contacting her doctor. The drug combination was having a bad effect on her and then she got confused and took more pain medicine too soon. You probably don't need to read all this but, I thought it might help others who do not know about fibromyalgia to understand what someone with the diagnosis might be facing.
posted by
TAPS.
on March 27, 2008 at 12:42 PM
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I understand. No one can find the source for my migraines and it is frustrating. I am glad it is now more open with the doctor's testament! sam
posted by
sam444
on March 27, 2008 at 11:52 AM
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Justi......................
I have a friend with it and it's nothing to scoff at. She is just plain miserable. I believe the doctors are prescribing Lyrica to help ease the pain. I think I read that somewhere. Well, it's a controlled drug but if it works, it's worth it. Whatever you're taking for it, I hope it works and that you're feeling ok. I believe a shorter life with comfort is better than a longer life with pain. Whatever works!
posted by
MaggieMae
on March 27, 2008 at 5:49 AM
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Justi
That has to be a very frustrating disease and I'm sorry you suffer from it luv. It sure did get me thinking because I'm tired a lot, in a lot of pain, but I know that in my case I've done it to myself with physical labour and a bad fall at a senior agoe. Luv ya's.
posted by
WileyJohn
on March 26, 2008 at 9:38 PM
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Somewhat like back pain...
In that you suffer it, but no one else can see it affecting you. Only fellow sufferers feel sympathy.
posted by
food4thought
on March 26, 2008 at 8:41 PM
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It's a very bad disease . God bless you !
posted by
afzal50
on March 26, 2008 at 8:34 PM
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