Comments on My Angelman

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What a special arrangement there..

I want to comment and say something really heart warming but am ashamed I don't know enough of the story to say even "go fishing!"
I bet Phil would like catching rabbits or squirrells in cage traps!
Probably might have to release them right away huh?
I cannot imagine the special talent you and your son must possess with you. You both bring hope to my little world with this one story!

You guys "both" are an amazing inspiration to me!

posted by SomeoneElse on August 5, 2013 at 9:37 PM | link to this | reply

It does seem that, as we age, our desire and capacity for these gatherings wanes. But as long as the family understands, I don't think anyone will hold any ill will against you . . .

posted by JimmyA on August 5, 2013 at 1:18 PM | link to this | reply

I am glad that adult care was found for Phil. It is a shame how long the wait is.

posted by FormerStudentIntern on August 5, 2013 at 10:03 AM | link to this | reply

I can only applaud what the other commenters have said.

I have a good imagination, but cannot imagine how the 24-7 weight of this kind of dependency would feel. Your son is amazing, and it's wonderful to know Phil is so cherished by you and his dad. Angelman is a great way to think of him.  

posted by Pat_B on August 5, 2013 at 4:03 AM | link to this | reply

Six weeks seem long but it gives hope that things will be better for all soon. Transitioning in life can be challenging.  You have friends here and in your life for support and they understand.  

posted by Dr_JPT on August 5, 2013 at 1:27 AM | link to this | reply

I am glad to read about you..

posted by Saif_AlKindi on August 4, 2013 at 8:45 PM | link to this | reply

TAPS

He, both of them, need Taps and her gentle spirit. you drew a winning card when you had that son. He is a real deal with child care that will never end and is a gardener, and can make anything else he chooses plus cook. I keep him on my prayer list he is a joy.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

posted by Justi on August 4, 2013 at 8:02 PM | link to this | reply

Re: jollyjeff

Yes, you are right.  Twenty-four/seven care is quite demanding and not everyone is capable of doing that without going crazy.  There was a time when son's wife could not take it any longer and left with the other children and son made up his mind to do the best he could.  As far as I am concerned, Phil could have no better Dad.

posted by TAPS. on August 4, 2013 at 6:53 PM | link to this | reply

I used to be a counselor for people like Philip

It's a lot easier to help care for someone with a disability like that than to be the primary caretaker

posted by jollyjeff on August 4, 2013 at 6:47 PM | link to this | reply

you are quite right about the not wanting to be here there and everywhere anymore. The last trip to Australia, I got on that last plane and told myself nowhere, anywhere for another year....and you and Son with the wonderful Phil...blessed indeed even if the blessing has some barbs that have to be avoided...I can just see him in Wal-Mart...

posted by Kabu on August 4, 2013 at 5:34 PM | link to this | reply

I totally agree with adhor Taps... You are indeed blessed in so many ways...  {{{{{{{{{{Taps}}}}}}}}}}}}}  

posted by Sinome on August 4, 2013 at 5:19 PM | link to this | reply

So special; your Angelman, your son, and his grandma. Even if Phil isn't aware of it, he is so blessed to have you both there for him. And you both are blessed by knowing and loving him.

posted by adnohr on August 4, 2013 at 5:09 PM | link to this | reply