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Re: Raye, you're absolutely right...
Well stated, Rumor. And yes, ask until he tells you, you have every right to know! I'm sure it's higher/better than mine, but nowadays whose isn't, lol!
posted by
Raye09
on March 20, 2011 at 12:34 PM
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Re:
Thank you, FSI.
posted by
Raye09
on March 20, 2011 at 12:31 PM
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Raye, you're absolutely right...
All parties are to blame (here in Canada, too) for their frivolous spending on everything but what really matters - life support and life maintenance.....I have an appt.with my respirologist this coming Friday, and want to ask him what my lung capacity is, as he never tells me unless I prod him..
..
posted by
Rumor
on March 19, 2011 at 11:54 AM
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I wish you well as a solution is being actively sought.
posted by
FormerStudentIntern
on March 19, 2011 at 11:49 AM
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Re:
Thank you, Dear Sam! It is puzzling..
posted by
Raye09
on March 18, 2011 at 4:40 PM
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Re: It's a very difficult call
Powerfully said and thought provoking, Azur. It is heartening to hear such stories and I am happy for your friend and her family. If/when I get to that point, I will be more than ready for a transplant. You are right about the variables and I have decided to go ahead and go through the evaluation as it doesn't obligate me to have the surgery and then I will know for sure where I am disease-wise.
Thank you, my friend..
posted by
Raye09
on March 18, 2011 at 4:40 PM
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I often wonder why we do not put more emphasis on life! I hope you never need a transplant! sam
posted by
sam444
on March 18, 2011 at 3:08 PM
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It's a very difficult call
My friend with a similar condition who I told you about was waiting for a lung transplant, and one did not come until she was gravely ill. If the transplant had not come within hours she would not have survivedbut she made it through, and she has fared well. In those critical hours and in the final analysis her daughters still have a mother, and their children a grandmother and she has them, and that's the thing that matters. I think you can only make the best decision you can make at the time. There are no guarantees but I think it's best not to question your worth in relation to others for treatment. There are too many variable. It is what it is. You can only choose your way on the path.
posted by
Azur
on March 18, 2011 at 1:45 PM
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Re: I just knew that this would happen...the rich get stuff and the poor don't
Yes, it is happening most unfortunately, Dear Kabu! Thank you...
posted by
Raye09
on March 18, 2011 at 10:40 AM
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Re:
Well said, CC. I do very much appreciate everything they are doing to try to "save" me, but I also feel bad for those who are so obviously dying and suffering - harder and faster than I presently am - wondering why they aren't worthy? I am younger than the average transplant candidate and probably in better shape than most overall, aside from my lung disease, but there are children who get listed for new lungs because of very severe, unstable asthma as I have or cystic fibrosis but die before the surgery happens....were they on private insurance or other programs - those are the questions I'm attempting to find out.
Thank you for visiting.
posted by
Raye09
on March 18, 2011 at 10:38 AM
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Re: One thing -- docs almost always think they know best.
Good points, Pat. Thing is, lung transplants have the worst survival statistics out of organ transplants - less than 50 percent are alive after 5 years..that's one of the reasons I'm trying to delay; the odds are improving yearly. Yes, it would be wonderful to do all you mention with light feet and ease again.
posted by
Raye09
on March 18, 2011 at 10:31 AM
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I just knew that this would happen...the rich get stuff and the poor don't
but at the same time I want my darling friend...that would be you...to get everything that I need.
posted by
Kabu
on March 18, 2011 at 10:00 AM
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It is rough Raye, but surprising how one adapts if not willingly . I suppose we are all afraid at some stage it would not be human if we were not. The one thing in your favor is that people are going to try to make you better. The opposite is happening in many cases. No one can really advise you, But I think you will know how to make that decision.
posted by
C_C_T
on March 18, 2011 at 9:52 AM
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One thing -- docs almost always think they know best.
Which ain't always true. But if they are fast-tracking a transplant, why balk? Let's say surgery happens, it goes well, your body takes to the replacement tissue. Very shortly you can breathe, baby, breathe. And walk and climb stairs and dance.
My ex had a liver transplant in '92, and even though he didn't work another day in his life, he could have. Chose not to. And he's still going, almost 19 years later.
posted by
Pat_B
on March 18, 2011 at 6:27 AM
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