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Sannhet-
You sound like a keeper to me!! Hope you get some time off, too!
Cee
posted by
LadyCeeMarie
on January 10, 2006 at 4:07 PM
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Cee -
That's what I try to do. I support through actions and deeds, and try to model the behaviors that are best for all - meditation, fun, work, play, etc.
posted by
sannhet
on January 10, 2006 at 3:19 PM
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FF, I could write a few blogs on denial.......
PD was insidious. It progresses slowly, so many of my symptoms just became a part of my daily life. It was when others noticed these "anomalies" that I had to admit that I wasn't hiding my mounting symptoms so well after all. I had to see many doctors before I got a diagnosis. My symptoms would never present themselves on demand. And PD is so unusual for someone so young. It sounds like you are managing that MS very well. You have a good attitude in your writing. Have you had it for long? Keep bloggin', baby!
Cee
posted by
LadyCeeMarie
on January 10, 2006 at 11:17 AM
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Cee, did you have an inkling before the diagnosis?
I distinctly remember the thought that I might have MS many months before my wake up call. I immediately thought I was just being neurotic. Maybe I should have been a doctor...
posted by
FactorFiction
on January 10, 2006 at 10:49 AM
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Sannhet-
sometiems that is how we deal with our illness; you keep your mind occupied to keep it from focusing on the pain. Just support her in any way you can; be there for her, praise her in whatever it is she is doing. My husband wants me to come sit with him and watch TV with him. If it's a show we both like, I can do it, if we snuggle. Otherwise, I'm up doing "stuff." Our marriage counselor told us we need to do dthings together like play cards with a group (that would be brand new) or go bowling (we've done that - loong ago). Do things like that with her and of course, tell her how beautiful she is and how much you love ehr. Touch and kiss often. My prescription for keepin' it real, keepin' it alive in your caretaker role!
Cee
posted by
LadyCeeMarie
on January 10, 2006 at 8:45 AM
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Don't be embarrassed, Maggie!
The secret to my dealing with this every day is to start each day in prayer and meditation, giving thanks to my Creators for the gift of this day and the blessing of finding new friends, of being surrounded by loving family and support and for giving me the mind, soul, and heart to love and share Their Divine Love with any who cross my path that day.
Also I think, what c hoice to I have. I've got this thing and who is in charge today! I am so back off Old Man Parkie (that's what I call him). I have the help of the drugs I take, but they're not working so well anymore. I think so much is my stubborn, fighting side that keeps me strong. You can do it too, Maggie. You have many crosses to bear. You will make it! You are a sweetheart and God's love is showering you with 2-3 miracles a day. I guarantee it!
Cee
posted by
LadyCeeMarie
on January 10, 2006 at 8:35 AM
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Maggie Dear
You have become influential in your comments as well. We were meant to cross paths. Eery time I get the urge to send Mike a sentence or two from his goodbyed girl, I think 'Maggie would say' "dangerous, not a good idea, cut it off." You are saving my pride!
I'm so glad!
posted by
LadyCeeMarie
on January 10, 2006 at 8:22 AM
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thanks Avant Garde
That is it! Absolutely!
posted by
LadyCeeMarie
on January 10, 2006 at 8:17 AM
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Cee -
You sound just like my wife. Doing a million things a minute and not taking time to "smell the roses". She has slowed down now that she has had to quit work, but that is about all.
posted by
sannhet
on January 10, 2006 at 8:17 AM
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Cee, I see it wasn't for me to roll on about my own disease, but to
tell you that I understand what you're meaning to get across to the reader, the fact that your own two diseases brought you to your senses about your own life and how vulnerable, or precious, it is.
You write beautifully and come across very well.
posted by
MaggieMae
on January 10, 2006 at 7:35 AM
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Gosh, cee, you are an inspiration - I was supposed to find you.....
I have a noncurable, nonregressive, nerve disease as well. It's called Severe Polyneuropathy. It's progressive and very painful. If you're not sure what it is, I'll give you a brief description. There is more than one kind, mine happens to be Poly (meaning multiple) Neuropathy (meaning nerve disease). It is a disease that eats away the nerve endings in the feet, legs, and hands. It is very progressive. I have a home health nurse that comes to my home (today is that day) every other Tuesday to give me an IV, made up of blood platelets and blood products, and it takes 2-3 hours to administer. I also have to use pain patches and oral pain medication to make it bearable.
It really gets me down and that's why I say, I'm supposed to find you and read your story. It makes me a bit ashamed of feeling sorry for myself seeing what you're living with on a daily basis.
You are an inspiration, a woman of strength, and courage. God bless you. I'll come back and read again later. Thanks.
posted by
MaggieMae
on January 10, 2006 at 5:03 AM
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Cee
I get very clearly what you are saying. You contracted two illness, which saved your life.
posted by
avant-garde
on January 10, 2006 at 4:32 AM
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