Go to I'm Still Standing; My Walk with Parkinson's
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John-
Please forward my email address if she doesn't get mad and have her mail me as well. I might have have a few good tips for her.I do this for people all the time.
Bless you and yours!
CeeMarie
posted by
LadyCeeMarie
on September 30, 2006 at 3:01 AM
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ceemarie53
Thanks for this blog luv. I just gave the name of that book to my daughter Neeny. Her father-in-law has Parkinson's, he's 70 now, and is having a tough time with it. So I shared your blog with her. God bless
posted by
WileyJohn
on September 29, 2006 at 8:20 AM
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Dear Success-
You bring up an excellent point. We had a fabulous neuroendocrinologist, terribly expensive and she saved my daughter's life -- literally!! Her psychiatrist recommended her. She was studying blows to the head. When my daughter told her about my Parkinson's, she told her of some amazing studies being done using Human Growth Hormone (HGH). My daughter, husband, and I, all of whom could document head injuries, took a stimulation test. It is about a $2000 test, and it, along with various other bloodtests, gave her levels of all my hormones, including HGH. We had to get my husband and daughter okayed by their insurance to cover the injections since they run $2500 a month. She had all of the hormones (near identical) made in a compounding pharmacy (my insurance covered those, too.) Since I was on HGH and social security, our doctor had a deal with them to send us poor people HGH for free. They had this arrangement with only one other doctor. We had a full round of tests every three months. The lab we went to said her patients were the only ones who got better. (She had been a microbiologist until she entered med school at age 36. She was tired of developing medicines that only treated symptoms. She became a neuroendocrinologist to study head injuries and the pituitary which led to her following the importance of HGH to our entire. My husband and I scored zero, my daughter .035. the average for adults is at least 5-15. I took injections for two years. It fights cancer, and it just starts curing what needs fixing first. If I could have been on it 5 years or more, I might have shown some PD improvement (they have in Europe). It's not fast acting but my carpal tunnel improved, my bone density increased. Well, to cut to what happened, HGH being a controversial prescription, the Kansas Board of Health, made up of a bunch of nincompoops, spent 5 days building a case against her and she a worse nincompoops atty. He didn't offer any counters to their allegings. At the end of 5 days, they changed the schedule and said they could present witnesses on Saturday. We were all ready to go on Monday, as scheduled . She had no last minute witnesses, (coming from all over the country) ; some of us could have come had we known to come on Sat. So the internet which carried the board's hearing, says, "Dr. ** was charged with ***. She offered no defense." What a bunch of BS.
Argh - you finally get a good doctor and they take away her license, her profession, her livelihood. She's lost her home, they took her husband to prison on an old charge (he was a PhenFen doctor and they went after them back them; someone (Fed) had a score to settle; it's all just rotten.
I'd better get to some other timely things to do today. Yes to your question. It's just if the PTW (Powers That Be) will allow doctors to do so. I think the Pharmaceuticals are loving who's in power now, making them money. They don't want us to get well. Especially Parkinsons, when it's $250. xs 5 per month. It's considered one of the most costly diseases to have.
Cee
posted by
LadyCeeMarie
on September 28, 2006 at 10:15 AM
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Do you think that the trend now of going back to treating the whole body
is helping open some eyes?
posted by
SuccessWarrior
on September 28, 2006 at 7:19 AM
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