Comments on Fibro Dysphagia

Go to Fibromyalgia by skye08Add a commentGo to Fibro Dysphagia

Fibro & Hi!

im in the same sort of position as yourself & I agree that the fibro groups are mostly for venting with although it helps to know you’re not alone, it also has the negative effect of no hope in the future.

i came out of the fb groups as there was so much bickering & stabbing members in the back that I couldn’t handle the drama! I only have my mum & my son now to care for me & make sure I don’t go too far down the rabbit hole of pain & dispair. They’re brilliant though, my son is on the Autistic spectrum so quite a bit has to be dealt with differently but he’s getting support thank goodness. 

I was told by one counsellor that I need to grieve for the loss of my ’normal life’ which will help with accepting my new life - have you been given the same advice?

sorry I didn’t intend this to be a long post, but best wishes and good luck 😊

posted by Seraphina_Moon on July 27, 2019 at 6:17 AM | link to this | reply

Those who have it do experience a lot of pain. I wish you well as you fight the disease.

posted by FormerStudentIntern on October 31, 2018 at 8:42 AM | link to this | reply

Oh, boy, I feel badly for you. I hope you start to feel better. 

posted by Sea_Gypsy on October 31, 2018 at 1:08 AM | link to this | reply