Go to FAITH SEEKING UNDERSTANDING 2007
- Add a comment
- Go to Did Limbaugh Rush To Judgment On Michael Fox?
Thank You CeeMarie, and I do agree I was impressed with Michaels
reserved comments about Rush and others who judged him so harshly!
posted by
MountainClimber57
on October 30, 2006 at 7:21 AM
| link to this | reply
Taps. I have a very difficult time with judgment on TV Ministers --
Some I believe are very committed and motivated to helping others, and honoring God; others, are very comitted and motivated to helping themselves. I leave judgment to God!
posted by
MountainClimber57
on October 30, 2006 at 7:20 AM
| link to this | reply
sorry for the vebosity-
I just reread what I wrote. One statement I want to explain because I meant no offense to Ms. Couric.
I said: "You take the state of wellness for granted until you have it no longer."
I do, every day. When I'm not tremoring, or cramping or twitching, i.e. I can sit quietly, I can speak with some volume, I can forget to thank the Almighty for my blessings, for my bit of feeling normal for just a little while. Like the song says, "You don't know what you've got till it's gone." When it goes away, and I am symptomatic, I remember, "Oh yeah, that felt good there for a while. Thank you, God, for the break." Then I get up and move around, or go take my meds and wait for it to maybe come back. In spite of it all, God is good. I only pray to make it another 5 years times three. They may have a cure by the time I'm 68.
CeeMarie 
posted by
LadyCeeMarie
on October 28, 2006 at 4:23 PM
| link to this | reply
To Mountainclimber and Taps-
It is with great interest that I have followed the discourse between the two of you re: Parkinson's. Your candor is appreciated. My daughter's psychiatrist said tremors really gave him the willys. He apologized and said he had several patients with PD and that tremors really got to him. So it's OK, MC, to admit difficulty in watching. You are not alone. Now for my personal blog to you both.
MC, it's too bad you were not able to watch the entire broadcast as Taps did, because you did not witness the transformations Fox underwent just in that 30 minute span of time. He said the next day that he took less medicine than usual so as to try to avoid the dyskinesia (that "some" people had found over the top in the advertisement.) That is why we must watch as he struggles with tremors for the first 2/3s of the interview. For just a few moments I see some dyskinesia, which really "takes one to know one" to perhaps be able to discern the difference. By the end of the interview, Fox quit moving irradically and appeared normal. The meds were finally kicking in the way they were supposed to. I thought the contrast between Fox and Couric was striking. Her father has PD, so who knows if or when this disease will touch her life? You take the state of wellness for granted until you have it no longer.
In spite of Fox's physical challenges with this incurable and debilitating disease, he speaks magnanimously of his detractors. He emphasizes that illness follows no party line and that he supports Republicans who also support stem cell research and federal funding of such research. Arlen Spector is the most visible of the few Republicans who support the research; Mr. Spector has cancer. It's a nonpartisan issue which calls for bipartisan support.
Fox was well-spoken and spoke eloquently to the many annoying questions Katie Couric kept asking. I say annoying, because some of them seem so ludicrous, such as, "Couldn't you film the advertisement on a day you were less dyskinetic?" Fox smiled and said, "There's no telling when that will be. You take the medications and it's a crap shoot as to how they will work." He pointed out that there is a whole crew of people waiting on him as well. She should have known that!
Yesterday much ado was made about Fox being OVERmedicated. You take dopamine to stop the tremors and when it works, you feel normal. It doesn't mean that you keep taking medication because you KNOW the dyskinesia will come on if you do. Most Parkies HATE dyskinesia worse than tremoring. There are days the meds work, and the next day, without any explanation, they don't work. You either tremor OR have dyskinesia. You try to stick to a very predictable regime, and it may make no difference. In my particular case, I generally get symptomatic between 11:00-2:00, for 23 years now. Now I can add a trunkal tremor, which means my body, my neck and my head tremor. Argh, it is awful when that hits.
I've found that the PD nurses and specialized neurologists (a movement disorder specialist or MDS) see Dyskinesia in me when I don't think I'm showing any symptoms. We are not our own best judge of how we appear to the outside world. We live with it 24/7. It sort of grows on you, and your family. I'm rather effusive when I talk, so sometimes those who know me well think I'm just being that, effusive. The professional or outsiders take one look and point at me from behind their hands.
Yesterday I missed two doses of meds and still got dyskinesia. How is that OVER-medicated? (Not like Rush's illegal ingestion of a high-powered pain killer!) I was suddenly feeling my shoulder twitching. When I realized how long it had been since my last dose of meds, that I realized how much time I'd spent in this chair, "spreading the news" about Parkinson's.
If at least, it has sparked lively dialogue and hopefully some enlightenment about Parkinson's disease.
CeeMarie
posted by
LadyCeeMarie
on October 28, 2006 at 4:00 PM
| link to this | reply
MountainClimber, Just curious, what do you think about preachers/ministers on TV? Does it make you question their motives?...their truthfulness?
posted by
TAPS.
on October 28, 2006 at 2:38 PM
| link to this | reply
MountainClimber, If it were not television and politics causing us to distrust each other, it would be something else. Sorry if I upset you.
posted by
TAPS.
on October 28, 2006 at 12:01 PM
| link to this | reply
Taps, know the truth is different. I have a young lady in my church who
is 25 years old and has MS. We all love her, work with her, and pray for her and with her. As a matter of fact she just got married, and her husband was deployed to Iraq. I guess the problem that bothered me the most about Fox is the use of TV. I have been in the ministry for over 36 years and seen more than I want to see, but I have always shown love and compassion. I even held the hand of a 15 year old till she died who had shot her self. I am not strong within myself, and I must have the grace of God, but I just had had enough with Fox and Couris, and I just trust and pray that it is all true and not television.
posted by
MountainClimber57
on October 28, 2006 at 11:48 AM
| link to this | reply
MountainClimber, What is really sad to me is that one whose
life and body was spared by the Amazing Grace of Almighty God cannot stand to look for long upon one whose body and life was not spared from debilitating disease. There are many who cannot stand to look upon the horrible ravages of PD and because of that people remain out of society, hidden away from public view, many even afraid to go to church for worship. If a pastor/teacher/doctor admits to this how can there be hope for those of his congregation to be accepting. What would you do if a Parkinsons patient were in your worship service and because they could not help it, slid out of the pew and down onto the floor and began to dust and clean the floor in the middle of the service and no one could make them stop because they could not stop themselves? Would that person forever be banned from your church so that worship services might not be interrupted in the future and so that other worshippers would not suffer embarrassment. I'm afraid that we have a long way to go before the teachings of Jesus are fully understood by those who are his followers.
posted by
TAPS.
on October 28, 2006 at 10:35 AM
| link to this | reply
MandLee -- You are probably right, Limbaugh did Rush to judgment
and in light of his past, he should have know better!
posted by
MountainClimber57
on October 28, 2006 at 10:06 AM
| link to this | reply
Taps, I could not stand watching him, if he was really hurting that bad,
it broke my heart, if he was enchaning his pain for political purposes, it broke my heart also -- so in either case, I had to move on!
posted by
MountainClimber57
on October 28, 2006 at 10:05 AM
| link to this | reply
He rushed to judgment.
posted by
Amanda__
on October 28, 2006 at 9:30 AM
| link to this | reply
MountainClimber, What did you mean when you said to Ceemarie that you watched the Fox/Couric video as long as you could? Were you referring to amount of time or to the fact that you couldn't stand to watch him? Just wondering.
posted by
TAPS.
on October 28, 2006 at 9:09 AM
| link to this | reply
RifDaws, Rush's apology did not last long, the next day he was
back at it again!
posted by
MountainClimber57
on October 28, 2006 at 9:04 AM
| link to this | reply
Troosha, You are right, and that is why Jesus taught "Do Unto
Ithers As You Would Have Them Do Unto You"
posted by
MountainClimber57
on October 28, 2006 at 8:54 AM
| link to this | reply
I did not listen to Rush's show when he made the comments,
but I was glad to hear that he apologized for them later in the same show.
posted by
RiFDaws
on October 28, 2006 at 5:29 AM
| link to this | reply
Rush was wrong wrong wrong!
He is a pill popper in denial and he insults a hero, (he insulted all of us who suffer from Parkinson's, and their families who live with us 24/7,) who has the guts to show what it's like to live with this disease. Most of us stay hidden away from public eyes because that
is what it's like; you take your meds and hope for the best, but their efficacy is decreased over time. We need our brains to produce REAL dopamine which the embryonic stem cells may be able to repair. One question that MJF brought up was that for 20 years, invitro embryos that were not used have been destroyed, so why all the hoopla suddenly when these discarded cell lines could be used to find a cure, to count for
life, not just thrown away; count for the greater cause, those of us who are
alive, afflicted with long-term illneses or injuries whose lives are already here, whose contributions to humankind have been cut short or in some cases, never realized, due to illnesses which should be cured, not just treated with drugs, making the pharmaceutical companies richer and richer.
OKAY, I'm stepping off the soap box now! Forgive me!
CeeMarie
posted by
LadyCeeMarie
on October 27, 2006 at 12:57 PM
| link to this | reply
Some people's minds a pretty narrow
(accept when it comes to their own life).
posted by
Troosha
on October 27, 2006 at 11:32 AM
| link to this | reply