skye01 A Caregivers Thoughts

By skye08 - About Me - E-mail this page - Add to My Favorites - Add to Blog List - See other blogs in Relationships

Saturday, October 4, 2008

The Passage to Heav'n

The Passage to Heav'n As you walk through the mist of fog that lies just below the mountain peak--follow your heart and you will be guided through to the next clearing and the next healing. The road ahead is clear as the sunshine reflects off the mountain peak--engulfing you in love and warmth and light. It is a continual pattern that urges you on with it's familiarity. The knowing ever present that you will soon merge with your self, soul, heart and divinity that grows within. You will then add... Sign in to see full entry.

Friday, October 3, 2008

I Am Balance

I Am Balance Each day begins running for the future The wake up call is oh' so early. It's 3am and the questioning begins. When will Johnny come on? Can we change the channel now? What's the weather going to be today? What time is it? How much longer until we get up? What time is it? Daylight comes and Johnny is on. But his eyes are wide and empty? He says he wants the same as yesterday for breakfast. As he eats,the stories start of days gone by. Childhood stories, past business meetings,... Sign in to see full entry.

Monday, September 29, 2008

The Wasting

The wasting was the longest and shortest eight months of our lives. The unrelenting push and pull of stark reality stared us in the face and we had to acknowledge with raw emotion it's presence. The wasting had not been experienced by our family until now. One hears of others who have been through this journey but never had to comprehend that it will happen to one of our own. In hind sight, the wasting started a spiritual journey for each of us of unbelievable magnitude and for some more than... Sign in to see full entry.

Saturday, September 27, 2008

I Lost It

Richard cut his new foley tubing and threw the bag away. He came out of the bathroom with free flowing urine. What a mess. I lost it and he couldn't understand what he did. I know I should have been more understanding of his confusion but we have talked about that new foley since yesterday. I have explained and explained that it is one single connected system and not to bother it. He understood how to empty the bag and close it. It has been a difficult 2 weeks and although it was good to see Tom... Sign in to see full entry.

Tuesday, September 23, 2008

Oh, What a Wonderful Day

It was a hectic weekend with funerals and cleaning for company. By Sunday I was so stiff and hurting, I really was dreading Monday and having to cook and be a hostess with the mostest. However, once I got up and going Monday, I was good to go. I knew that Betty would be here and so I wasn't stressed until the phone call from a girl named Tammy asking for directions to our house. Where's Betty? She didn't know. She was called yesterday to see if she could fill in. Panic. Tom is on his way and I... Sign in to see full entry.

Sunday, September 21, 2008

The Peace of Knowing It's Time For Transition

In the grieving stages, acceptance comes so much easier. We have had 2 funerals this week. One yesterday and one today. I have spoken with the spouses of Mary and Arvel and they and both Mary and Arvel were ready for transition. Arvel had colorectal cancer with the accompanying surgery a colostomy, radiation, and chemo. He was in remission fo 22 months before it came back. My Dad died with colon cancer 19 years ago and he only had surgery. He refused chemo because of the side effects. He still... Sign in to see full entry.

Wednesday, September 17, 2008

I have been doubly blessed with caregivers.

I was told that I was lucky to get Betty 3 days a week when I called to make sure that she was not going taken away. This week Tina started for Tuesdays and Fridays. Although she had only been here one time, she is a good worker and friendly and I feel I can trust her. They are both competent and have been caregivers in their own lives so they have walked in my shoes. That fact makes a big difference. I can sleep if I need to or take time to meditate or pitch in and get things sorted and... Sign in to see full entry.

The Blessings of Angels

I am now so blessed with the best caregiver assistants. I get Betty 3 days a week and I found out today that I get Tina the other 2 days. They have both been caregivers and understand what a caregiver's needs are. They just come in a take care of me and Richard without asking me what to do next. They understand that decision making is difficult at best. I have no organizational skills and they understand. I can lie down and sleep if I want and need to and they will take care of Richard with kid... Sign in to see full entry.

Monday, September 8, 2008

The Supplemental Payments

My Mom mailed in her 1040a for the stimulus funds and received a letter she would receive it within the next 6 weeks. Two days later she gets a letter that she owes 338.00 in taxes, with interest and penalties. So today I had to call the IRS and get it all sorted out. She hasn't had to pay taxes for years. The IRS told her so. I mean she only gets 12,000.00 a year to live on plus 1/3 of what she should get from my Dad's social security death benefits. She is penalized because she worked at the... Sign in to see full entry.

Friday, September 5, 2008

Value of a Caregiver

I have been a caregiver for others for many years and have always held the belief that others would give as much as I have and would also go above and beyond the call of duty or job profile to help and care for another. As my ex, who works with autistic and mentally challenged individuals, told me the other day: "You know some people are only here for a paycheck." "It's hard for me to understand that way of thinking". I found out the hard way after giving someone our trust during these recent... Sign in to see full entry.

Saturday, August 30, 2008

It's 3a, and I know where my children are: IN BED and ASLEEP!

Although I am in bed, I am not asleep. I got the 3am wakeup call from Richard again. He thought it was breakfast time. I got him to eat supper leftovers that I rewarmed. I don't do mornings well. I don't get good brain perfusion until 10am. He is set on going to the Farmer's Market in the morning so I'm sure I'll be up in a couple of hours soon. He will be obcessing about going until it is time for it to open. He starts at 5am on Tuesdays and Thursdays when his bath aide comes at 10am to help... Sign in to see full entry.

Wednesday, August 27, 2008

The beautiful sound of silence

I changed internet providers and have been off line for several days. I finished painting the wall downstairs where I moved my land computer. I had remodeled my downstairs into an apartment for Brooke and Scott last year and they had painted the walls black. Black walls did not seem very soothing to me so I am repainting the downstairs again this year. My massage and Reiki therapist comes to my house now since I can't leave Richard. I am creating a Zen space for relaxation. She is going to come... Sign in to see full entry.

Saturday, August 23, 2008

Prayer continued

Well I can't seem to edit my last entry. As I was saying, the hospice nurse called the doctor and gave him my assessment. He was a little upset she hadn't come out to get an assessment and wanted to know my qualifications for the assessment I had given the Hospice Nurse. She told him that I was a nurse and more than qualified to give an assessment and that my assessment would not be any different than her assessment. He finally ordered an antibiotic and I went and picked it up. Richard was more... Sign in to see full entry.

What Do I Prayer For

Richard has pneumonia again. This time seems to be different. He is giving up. I don't want to see him sick again and I don't won't him to give up. On the other hand, I don't want him to progress to the point like he was last weekend when he went outside in his underwear and took the bed apart and wanted to get dressed and go somewhere and wanting to call his friend in Texas. He has no memory of this behavior and I haven't told him that he went outside in his underwear. He would be crushed. His... Sign in to see full entry.

Tuesday, August 19, 2008

Silence is beautiful

I long for the sound of nothing but that would mean that I would be alone with no TV or it's light to bring comfort to Richard. Then again, how long will have I to have the comfort of it's light and sound until I can be comfortable and rest in the silence of dark. Until then I can escape to the sauna and my cone of silence and the peace it brings to my soul as I rise to the vibration of the All, if only to feel the outer edges of perfection. It is my connection to the Universe that will bring me... Sign in to see full entry.

About this Blog

skye01 Having Fibromyalgia and Chronic Fatigue Syndrome and Caring for my husband who had Parkinsons and Alzhiemer's and the changes we face each day. Meditations for stress relief and care for the soul. My journey through the grief and reaching acceptance. My life as I have grown in Love and Joy and Happiness with my family and friends.

People

Blogs

Links

Headlines (What is this?)