skye01 A Caregivers Thoughts

By skye08 - About Me - E-mail this page - Add to My Favorites - Add to Blog List - See other blogs in Relationships

Wednesday, November 12, 2008

Yesterday Was a Slap of Reality

After 4 days of trucking it up and down the stairs not only for me to go to the bathroom but also to empty Richard's potty chair, my body has rebelled most loudly. If Teena had not decided to come and help me even though Aid and Assist has cut her hours, I don't know what I would do except to stay in bed and save my energy for caring for Richard. He has been pretty spry the last couple of days at times but then he poops out and it is a real challange to get him moving. At least we haven't had to... Sign in to see full entry.

Tuesday, November 11, 2008

And I Helped

Hoooorrrraaaay! We have an upstairs toilet again. I'm exhausted from going up and down the steep stairs to the downstairs bathroom. I do well to get up and down once or twice a day. There have been times when I went downstairs and couldn't get back upstairs for hours. Anyway, Richard feels like he has helped with the bathroom. JT talked with Richard every step and let him put his 2 cents in everyday. He has really been so respectful to Richard. Richard thinks JT and Teena are finer than sliced... Sign in to see full entry.

Friday, November 7, 2008

The Awareness of True Thankfulness For Blessings

please see lessons in life blog. Thanks skye Sign in to see full entry.

Thursday, November 6, 2008

Choices

Choices As I awake to each new day, rain, snow or sun; It is my choices to release my light within and as my light shines so does the Light of God. And these Lights meet and strength is gained for me to be stronger and brighter then I could ever hope to be. His wish is happiness for every choice made and we chose how to act. So if our choice is to hide our light because our day looks bleak, there is no light to find God's Light and our strength withers from within. The path of life is a shared... Sign in to see full entry.

Tuesday, November 4, 2008

Easy come, Easy go

see Living with Alzhiemers Sign in to see full entry.

Monday, November 3, 2008

RUN AWAY, RUN AWAY, AND HIDE

Hoooooraaaaaay!!!!!! I have runaway for an hour. My hour of freedom was not without scarifice. I had to stop immediately what I was doing to assist Richard every 5 minutes for the past 15 years. Well, not 15 years but for the past 2 hours. If I didn't he began to moan and whine like my ex-mother-in-law. So after the third whine, I responded like a mouse in what's his name experiment. (sorry, my brain is numb)/ I ran away to the basement and my sauna and Celtic Women CD. My back has been in spasm... Sign in to see full entry.

Friday, October 31, 2008

How Lucky I am

I cannot tell you all enough how much of an Angel Teena is and JT is such a professional. He always talks with Richard about all our projects that have to be done on a man to man level. It makes such a difference for Richard to feel in control. Teena and JT are such a nice couple and really treat Richard with a lot of Respect. JT has the subflooring on and has laid some of the tile. It is going to look so nice. He is using the Brick tiles I had bought many years ago and is also going to intermix... Sign in to see full entry.

Thursday, October 30, 2008

From a Night in Hell to a Day in Heaven

If you read "Living with Alzhiemer's, you know that last night was not the best. Also, this morning was bath day and JD was coming early to start tearing out my laundry room /downstairs kitchen floor that got soaked with the water leaks. By the time Teena and JD got here, Teena was not going to have sweep the floor because my butt was dragging. Then the VA respiratory therapist called and wanted to come by and check Richard's CPap machine around noon. I told her that she would need to be here... Sign in to see full entry.

Monday, October 27, 2008

I am an empty vessel

I have no energy stores to call upon. Somewhere along the way I have also lost my joy. I need to get it back. Richard thinks I'm ashamed of being seen in public with him. Vanity thy name is Richard. I can't get him to understand that even if he was well enough to drive, I still don't want to go out. I need desperately to remember what happiness is and restore it within myself. I am going to have to force myself start an exercise routine that is very gentle and change my diet. It is hard when I... Sign in to see full entry.

Thursday, October 23, 2008

If it's not one thing, it's two or three or ...

I had one nerve left today and it was stepped on hard. If you read about my fun on Saturday on Living with Alzhiemers, then I had more of it today. Tuesday there was a very large pool of water in the laundry room that Teena found when she went down to do the laundry. We moped it up and today we found even more. Luckily JT had come with her because he was afraid there might be another leak that he hadn't found on Saturday. He crawled all the way to the back corner of the house and it wasn't a... Sign in to see full entry.

Friday, October 17, 2008

Torn

Brooke is at the hospital with Scott. He might have appendicitis. I hate that she has to be by herself but I can't leave Richard. I've got her brother on stand by in case Scott has to have surgery. Grandma and I will man the phone since neither of us can be there with Brooke and Scott. I remember when my nephew was hurt in Afganistan and how hard it was for my sister until she could get to him. I can't leave Richard to get to Brooke. She had a bad wreck a year and a half ago. This stupid pulled... Sign in to see full entry.

Monday, October 13, 2008

It's Been 3 Days

I just noticed it had been 3 days since I posted here. Well for 2 days I slept because I had painted the downtairs for 2 days and except for trimwork and 1 wall the two rooms will be completely painted. Next up is the bathroom that didn't get painted last year when it was remodeled for Brooke and Scott. "Moooooom you can paint so much better than I can" But Brooke, it is your apartment so here is the primer and the paint you wanted and that is far as that project got. A side note on Brooke and... Sign in to see full entry.

Thursday, October 9, 2008

The Caregiver got Taken Care of.

It was a wonderful day of relaxation and productivity. I'm tired but I got the pain undercontrol and I'm looking forward to a good night's sleep. I received a lot of posiive energy during the Reiki session and it is still circulating. I am sleepy again and hope I get to sleep all night. I'm even going to turn the news off and out on some relaxation music. Good night all. Sign in to see full entry.

Tuesday, October 7, 2008

I;m actually sleeepy

Not just tired and exhausted but sleepy. Good Night. Sign in to see full entry.

How Long Have You Worked Here

Well, I had just laid down and was starting to meditate and do my breathing relaxation when heard "Mama", "Mama" are you awake? I got to get up. His right arm started shaking and shook the bed hard. I knew he had to have his Parkinson's medication. So I had to get up. I had to lift him to a sitting position and he was so stiff and was afraid he was going to slide off the bed. His speech was garbled and it was hard to understand what he was saying. I got his medication ready and got him some cold... Sign in to see full entry.

About this Blog

skye01 Having Fibromyalgia and Chronic Fatigue Syndrome and Caring for my husband who had Parkinsons and Alzhiemer's and the changes we face each day. Meditations for stress relief and care for the soul. My journey through the grief and reaching acceptance. My life as I have grown in Love and Joy and Happiness with my family and friends.

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