Saturday, February 25, 2006
ZARRAH SURE IS A FIGHTER!
Zarrah has been doing ok this past month. Her reflux has been triggered a little bit more than normal but I think that's because she's developed a degree of tolerance to her medications. I guess that's to be expected when she was only expected to be on them for a couple months and now we are past...
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Wednesday, February 22, 2006
THE TRUTH BE TOLD!
My appointment yesterday with my doctor was very...interesting. She guessed right off the bat by the look on my face that she'd tapped into my thoughts on being pregnant. Although her plan was to quickly disprove it. The odds were so high against it and it was true that I hadn't had a test yet. She...
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Tuesday, February 21, 2006
I Never Really Thought Of Myself As A Quitter...
My whole life I've always went after things. Whenever possible I never gave up on something and I never quit, that's just the way it was. Some might call attribute it to strength, often it was probably just plain stubbornness. Well yesterday I blatantly quit an internet support group called...
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Sunday, February 19, 2006
Not Breathing Is Just Plain Scary!
You know what it's like to not be able to catch your breath for just a second or two. You're heart skips a beat, adrenaline levels skyrocket and panic starts to seep in. Last night Zarrah was sleeping as usual in her car seat, hooked up to her feeding pump and listening to Mozart's greatest...
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Friday, February 17, 2006
Vomiting Coming Back...
We've been able to control Zarrah's severe reflux (vomiting) with medications fairly successfully the past five or six months. The past few days her reflux has been showing signs of becoming the 'focus of my day' again. Her episodes are slowing but surely creeping up on us. I guess there is a reason...
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Monday, February 13, 2006
HAVING SOME TUBE SITE TROUBLES...
Just to let you know little Zarrah is coasting along just fine. She's 15 months old and still scoots around on her bum like an almost 16 pound monkey. The only new trouble we've been encountering is a lot of bleeding and seepage from her feeding tube site. So I'm knee deep in bandages and trying not...
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Monday, February 6, 2006
SMART LITTLE COOKIE!
Zarrah is really starting to show her personality and is quite the smart little cookie. She's figured out she can pretty much get what she wants by just smiling and holding her hands out. She's just so darn cute! Her brother and sisters adore her and are starting to get worried about her upcoming...
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Tuesday, January 31, 2006
IN ONE END AND OUT THE OTHER???
Just updating Zarrah. She's a much happy camper this week but of course we can't just move along smoothly at a snails pace. We've got to avoid all the cracks in the road too. Now Zarrah is back to drinking 4 small bottles a day and fiddling with about 1.5 cups of baby food...yeah! The problem now is...
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Saturday, January 28, 2006
TALK ABOUT CRAMMING!
Well Zarrah has 8 weeks until her next surgeries and the goal is to make sure she's as 'developed' as we can get her before we head to Sick Kids Hospital. Our goal is to have her walking and talking a little because her recovery is going to be a difficult process. During which she's unlikely to gain...
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Tuesday, January 24, 2006
RESPIRATORY ANXIETY!
I think we've finally got Zarrah's infection under control and now she seems to have flared up her respiratory issues. In any of my other kids a bit of cough and congestion wouldn't worry me. It would actually give me an excuse to give them some warm soup and put them to bed early! But with Zarrah...
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