Struggling with a Rare Birth Defect

Monday, March 27, 2006

Zarrah's Off For More Surgeries...

This morning Zarrah and I are leaving for Toronto Sick Kids Hospital where she will be undergoing more surgeries on Wednesday morning to try and fix her stomach and bowels. The anxieties waiting are the hard part. We just need the surgeries to be done and the recovery process started. There's no... Sign in to see full entry.

Thursday, March 23, 2006

IS ZARRAH REALLY THAT TOUGH?

I know Zarrah is a strong child, she's been through more already that most of us medical wise. But how much of this will Zarrah remember? I know we don't know for sure but who's to say that it doesn't subconsciously affect her more than we'll ever know? Is it better for me to agree to have her... Sign in to see full entry.

Sunday, March 19, 2006

ONLY ONE WEEK TO GO>>>

I can't believe Zarrah's surgeries are only a week away. Still not sure how I'll manage to get everything together, but I'll try. Unfortunately I'm still feeling like crap because of the next little one, I'm usually way past it by now. It sure doesn't help! I've got anxieties about my prenatal tests... Sign in to see full entry.

Wednesday, March 15, 2006

STUMPING THE DOCTORS IS HABIT FOR ZARRAH

Cute little Zarrah has been stumping the doctors since birth. Her latest 'baffling' incident involves her feeding tube. She's currently on antibiotics for an ear infection and tube site mess. Well now for some reason unbenounced to everyone Zarrah is able to push draining liquid and partially... Sign in to see full entry.

Sunday, March 12, 2006

MY GUILT LEVELS ARE RISING...

I know my guilt levels are slowly rising because I'm starting to 'spoil' the kids a little. I'm a firm believer in kids earning their privledges and treats. Whether is be through chores or good behavior. Yesterday on a whim I took the kids to McDonalds for supper and let them have a bowl of chips... Sign in to see full entry.

Friday, March 10, 2006

I NEVER KNEW...DID YOU?

Did you know that with an ear infection the ear drum doesn't fully heal until about two weeks after you've taken 10 days of antibiotics? Wow...that's a long time. Poor Zarrah has a tube site and ear infection right now. She hasn't been overly miserable but I see why she was sleeping more. It took me... Sign in to see full entry.

Tuesday, March 7, 2006

THE TRUTH IS TOUGH BUT NECESSARY

Last night the strongest man I know (father) and I talked about little Zarrah's upcoming surgeries. It was hard but necessary to talk about the good, bads and everything inbetween. 1. We know there is a chance that surgery may not 'cure' Zarrah of her issues and she will have a feeding tube and... Sign in to see full entry.

Monday, March 6, 2006

NOT EATING...

Zarrah has decided in the past few days that she really doesn't want to eat very much at all. She used to drink 4 x 120 ml bottles of milk a day and about 1.5 cups of baby, along with a few crackers and maybe a little apple. A lot less than she should but it would do because she was also being... Sign in to see full entry.

Thursday, March 2, 2006

STARTING TO FEEL A LITTLE ANXIOUS...

I've been pretty good the last while but now I'm starting to get a bit anxious, it comes with the territory. Zarrah goes to Toronto for her surgeries in less that 3 weeks. For me that's the point of no return. If everything works then we're all heros. If not then the guilt starts taking control, at... Sign in to see full entry.

Monday, February 27, 2006

What Would I Do Without An Infant Car Seat?

Wow...with this moving and everything it's so easy to put Zarrah down for her naps because I just pop her into her infant car seat and that's that! It's much easier for her to adapt to change when being in her familiar car seat environment. Most kids venture into the front facing seats around 6-8... Sign in to see full entry.

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