I'm Still Standing; My Walk with Parkinson's

By LadyCeeMarie - About Me - E-mail this page - Add to My Favorites - Add to Blog List - See other blogs in Health & Fitness

Thursday, January 25, 2007

Wired!

Here I am being wired to measure my gait or walk. I did this same study about 4-5 years ago with a different team of researchers. Working on me is Adriane, the cute girl from Rio De Janerio, Brazil; the man kneeling is from India, and the man at the computer is from China. My neurologist and Movement Disorder Specialist is from India, is quite handsome and dresses like he walked out of Men's Quarterly! My new neurosurgeon comes to KC by way of Boston and sounds like he grew up in the Boston... Sign in to see full entry.

Tuesday, January 23, 2007

Participating in Research Studies for Parkinson's disease

I am doing a follow-up research study at the University of Kansas Medical Center. I feel it's important to participate in such studies to help further understand the 'ins and outs' of my small dis-ease, as YPunday called it. Wednesday will mark day 3 of 3 trips to doctor appointments of the week. I'm sorry I haven't been around to blog as much as I usually do or to read your most interesting thoughts as I'd like, but I am getting yearly tests and evaluations done, as I should. It takes a lot of... Sign in to see full entry.

Thursday, January 18, 2007

On Telemarketing

I thought I would tell you what I found out about keeping telemarketers off your phoneline or cableline! You need to register your phones every five years! I didn't know that! Of course, you have to re-register if you get a new number. You can call a number and it must be made from the phone number you are registering. That number is 1-888-382-1222. If 31 days after the day you register, you get a call, just find out who is calling and/or their phone number and they will be fined. It takes 30... Sign in to see full entry.

Wednesday, January 17, 2007

Never Had this Happen!

Yesterday, I got a call from (and for the life of me I can't think of what this kind of call is called!) let's call her a "junk mail caller." I was especially conscious of my vocal level and thought think loud and I answered with a pretty loud "Hello" or so I thought. The caller said, "Hello? Is anyone there?" I answered "yes" and she asked specifically for me. I told her it was she speaking. She went into her 'schpeal', then stopped mid-sentence, while I on the other end was ho-humming and... Sign in to see full entry.

Friday, January 12, 2007

Stem Cell Debate Heats Up Again

Yes, it's back! Stem cell fever! Yippee - 'Ol Man Parky, my uninvited resident in my brain, doesn't like it. They may discover something that would force him to divorce me. They are finding that the stem cells found in amniotic fluid are just as teachable as the embryonic stem cell lines that are creating the slippery slope of when does one become a viable life. When does the spirit enter your being? I tend to agree that it is closer to birth, because you as a spirit aren't going to do what it... Sign in to see full entry.

Friday, January 5, 2007

A New Patch and Two Agonists

First noted signs of Parkinson’s, 1984 A New Patch and Two Agonists Part Two: I now understand the impact of this disease upon my body. I was observed with a tapping finger at my son’s baptism 1983. That was when I was 30. As the tapping progressed to tremor to non-functional hand, I was finally properly diagnosed when I was 36 or 37. I have had a lot of time to get acquainted with this Old Man Parky, that was foisted upon me at the young tender age of 30. The average age of onset is 60. I was... Sign in to see full entry.

Thursday, January 4, 2007

Me and My Shadow (Parkinson’s)

Neurosurgeon, Steven Wilkinson, me, Neurologist/Movement Disorder Specialist, Dr. Raj Pahwa May 2000 one year post Deep Brain Surgery Part one: Today, January 4, 2007, Parkinson's disease (PD), has made the news with two big stories; ALL on one day. Wow! It is taking me too many words to put this into one blog so I’m splitting it into two parts. My next title (A New Patch and Two Agonists) sounds like I'm giving a movie review but I don’t think it will be nearly as humorous as, say, " Four... Sign in to see full entry.

Saturday, December 30, 2006

Balance Impaired - Not Mind?

You know, I won't think twice now about asking for help after this. Let me tell you about LAST night's near disaster – “almost falling down - but didn't get hurt” tale. I sat down on the floor to put away some dishes on the lower shelf of the china hutch. I needed a hand getting up. Pattie, our dog, was trotting by just as I was needing something right at her level to help me stand up. I put my hand on her as she went by just to give myself a boost -- BUT -- she kept on going, imagine... Sign in to see full entry.

Friday, December 29, 2006

DVD's 'n me - What Up?

Has anyone seen he movie that Paul Giamatti is in, "Lady in the Water" (A Bedtime Story)? We just rented the DVD and it helped me take my mind off some disconcerting news. Ron Howard's daughter also stars in it. If you love make-believe come to life, you will delight in this tale. I didn't fall asleep once for even a little while, being the narcopleptic Parkinson's person I am. I liked the “Sixth Sense” and “Signs”, too. The cardiologist's routine followup appointment may hold some of the... Sign in to see full entry.

Tuesday, December 26, 2006

A Loss of Independence

(I have one almost just like this one!) A Loss of Independence This is a complaint I heard often from my father in his 80s. He lived to be 93. When you get to the point when you need help, you start to feel that loss of independence. How much longer until you have to be fed, bathed, clothed, toileted? It all seems downhill once you ask for help. I’ve gotten to that point with my Late Stage Parkinson’s. I’ve been Late Stage for about 8 years now. It’s Last Stage Parkinson’s that I’m not too crazy... Sign in to see full entry.

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